By Tyler Amorando

The Alpha-1 Foundation’s annual Bettina B. Irvine Golf Invitational returned to Greenwich on May 28th, raising critical funds and awareness for a rare and often overlooked genetic condition: Alpha-1 Antitrypsin Deficiency. This year’s event carried particular emotional weight as the Foundation honored longtime advocate and supporter Kenneth Irvine, whose late wife, Bettina, founded the invitational in 2014.

Bettina Irvine, diagnosed with Alpha-1 in 1996, transformed her personal battle with the disease into a public mission. Rather than retreat from the diagnosis, she leaned into activism, eventually becoming president of the Alpha-1 Association in 2002, a precursor to today’s Alpha-1 Foundation. As her husband Ken recalled in a recent interview, “She really became a n

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