By all accounts Elijah Caden Hennessey was a remarkable child, who enjoyed life even as he faced a daily struggle to survive. The seven-year-old was born with heterotaxy, a rare form of congenital heart disease which had necessitated numerous trips to local hospitals as well as Sick Kids Hospital in Toronto.

In recent years his condition worsened to the point where he was spending much more time at Sick Kids. That did not discourage his parents, Jessie and Thomas, from searching for any way possible to help their child. Just recently they were the recipients of a detailed surgical plan from Boston Children’s Hospital that offered them hope. Talks were ongoing between Boston and Sick Kids to decide how and where this innovative surgery could be performed. To help cover expenses a GoFundMe

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