ORLAND PARK, Ill. (WLS) -- A little boy in the Chicago area is battling a rare disease and desperately needs a drug treatment for a better life. The drug has not been FDA approved, and it could disappear if it isn't soon.

At issue is whether the U.S. Food and Drug Administration will approve the drug that is currently used to treat an ultra-rare disease called Barth syndrome. It's so rare, the FDA has delayed its approval in part because the sample sizes are so low.

The pharmaceutical company that produces the drug has said it could go out of business. For one family in Orland Park, that could spell disaster.

ABC7 Chicago is now streaming 24/7. Click here to watch

In his short life, Adel Mohammed has already been through so much. He was not much more than a month old when he was rushe

See Full Page