SIOUX FALLS, S.D. (KELO) —A Garretson family is doing what it can to raise money to find a cure for a rare syndrome.

Three-year-old Carter Dreckman was diagnosed with CTNNB1 when he was just 10 months old.

"CTNNB1 is just a rare, neurodevelopmental disease, that affects, you know, mentally, physically, very similar to cerebral palsy," Carter's Dad, Luke Dreckman said.

There's a couple different research projects looking into a cure for CTNNB1. One of them is gene based therapy.

"They're hoping to, by November 1st here, start the trials for that. As long as the funding is in place. And, as long as that funding is in place, and they're on a final push for about $500,000 to be able to get that medicine released to start that trial," Dreckman said.

Because it's such a rare disease, a lot

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