Dear Annie: My husband and I have a large family, and earlier this year we welcomed our newest baby, “Izzy.” The pregnancy went smoothly, and everyone thought she was healthy until about half a week after coming home, when she began showing concerning symptoms. We’ve been working closely with her doctor ever since and recently learned she has a rare genetic condition. It’s incurable, causes severe symptoms and is usually fatal in childhood.

We’re OK sharing information about her condition with concerned family and friends in our children’s school group. However, I’m not sure how to respond when strangers in public notice something is clearly off. I want to respect Izzy’s medical privacy, but I also don’t want to arouse suspicion that we’re hiding something.

The first time a stranger poi

See Full Page