Of all the worries that play in a constant loop in Genevieve Chua’s mind, the kind of fears that come with having a child with a serious disability, there is one that physically hurts to think about.

What would happen to her beautiful boy Edward if she and her husband were no longer around to care for him?

Genevieve has sought to keep these worries from Edward’s identical twin, Ethan, who will forever carry the weight of being born healthy alongside a brother who will never live a normal life.

So it took her breath away when seven-year-old Ethan recently said to her out of the blue: “Mum, before you die, you need to teach me everything you know about Edward, so I can continue to look after him after you go.”

It occurred to Genevieve as she fought back tears, that while it had never bee

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