A family of a little girl with condition dubbed ‘childhood dementia’ are raising $6 million to get treatment approved by the FDA — after she was diagnosed when they spotted a child with the same strong eyebrows on TikTok .
Morgan Rachal, 30, was over the moon when doctors told her that her daughter, Lydia, now three, was “the perfect baby.”
The mom-of-two had thought her daughter was completely healthy apart from the occasional common ear infection, constipation, and sleeping problems .
But when her mom, Cindy Weaver, 54, was scrolling through TikTok, she spotted a little girl who looked identical to Lydia, had the same symptoms, and had a rare disorder called Sanfilippo.
Children with Sanfilippo syndrome typically have full lips and heavy eyebrows that meet above the nose, or hirs

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