CHICAGO - When Jesse and Hollie Erickson of Chicago, Illinois, found out they were having another baby, they were thrilled and prepared, considering this wasn’t their first rodeo. But what they were not prepared for was having a child who would be diagnosed with a rare genetic disorder.

While this certainly broke their hearts for their child, they decided their son Bedford’s unending determination deserved a spotlight and decided to educate people on his condition.

"When we were choosing Bedford’s name, I felt like every name I threw out, Jesse was like, ‘No, no, no.’ I threw up Bedford from ‘It’s a Wonderful Life’ because that’s my favorite movie. The idea that one man’s life can touch so many. So now that we have seen this come to fruition, it’s like, it’s crazy that his name on top

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