SALT LAKE CITY — A family is asking for help from the community to find a bone marrow donor who could save the life of their 3-year-old, who was diagnosed with a rare, aggressive brain disease.
Jazmynn Pok and Anthony Duke-Rosati said time is of the essence in finding a donor for their son, Kiri, who’s diagnosed with cerebral ALD — a disease that’s fatal without treatment.
“Cerebral ALD, a rare, aggressive brain disease that attacks healthy children without mercy. It begins by silently destroying the brain — stealing speech, movement, and vision — until the body shuts down completely,” Pok and Duke-Rosati said on their website, Hopeforkiri.org . “Without your help in finding a donor match, Kiri could start losing critical functions within months, and his life expectancy without a match i