Emma Heming Willis, wife to and carer of Bruce Willis , opened up to Diane Sawyer about what her life with the former movie star is like today. Willis was diagnosed with frontotemporal dementia in 2023 . The disease affects the frontal and temporal lobes of the brain and causes memory loss, personality changes, and in Willis’s case, aphasia. Willis retired from acting, and now Heming Willis has written a book about her new life, The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path. Here’s what she had to say about her life with Bruce Willis, his health, and what it’s like to become your husband’s primary caregiver.

Heming says the first symptom was Willis getting more reserved.

The average age for frontotemporal dementia is 56, much younger than many

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