NASHVILLE, Tenn. (WTVF) — It can be so frightening for parents to learn their child has a rare condition. It must be unimaginable to hear your child could be the only person with a particular diagnosis. One family is asking for your help as they approach some trial treatments.

When their daughter was born, Jazzi and Dwight Little wanted a name with deep meaning.

"This is Aadi Ase," Jazzi said, referring to her 19-month-old daughter. "Aadi means 'the first.'"

They had no idea how much the name would fit their little girl's story.

At five-months-old, Dwight brought Aadi to Monroe Carell Jr. Children's Hospital at Vanderbilt. Aadi seemed to be sleeping too much, and there were other things that were concerning them.

"The next call I got was, 'they're admitting her right now. It's looking

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