For many, going to the grocery store, stopping by the post office, or attending a college class barely requires a second thought. But for patients like me who rely on supplemental oxygen, these activities require careful consideration about how many tanks of oxygen I’ll need to bring and whether I can make it back home safely before my oxygen runs out. This has been my reality in the 10 years that I’ve relied on supplemental medical oxygen to help me manage progressive fibrotic interstitial lung disease, which severely impacts my ability to remain active, in addition to the challenges of living with scleroderma and pulmonary arterial hypertension.
As a result of these conditions, I rely on supplemental oxygen to breathe. While I am thankful to receive supplemental oxygen at home – instead