Jack’s Generosity to host Shawnee golf fundraiser for rare disease families

Jack’s Generosity, an Oklahoma nonprofit founded in 2024 by Kiley Proffitt, is hosting a golf tournament in September to raise awareness and funding for families impacted by rare diseases. Proffitt started the organization in memory of her son, Jack, who was born with a fatal form of mitochondrial disease and spent his seven-week life in the NICU.

Through Jack’s Generosity, Proffitt provides comfort boxes to NICU and PICU families across the state and partners with organizations that fund research into rare mitochondrial diseases.

Swing For Genes Tournament

The fundraiser, called Swing for Genes , will take place Sept. 26 at Firelake Golf Course in Shawnee. The event coincides with World Mitochondrial Week, Sept. 15–21.

"This is the second year we’re hosting a golf tournament to hono