WA’s business community united last month for a fundraising event set to transform care for more than 63,000 WA children living with rare and undiagnosed diseases.
The Gold Series — Perth is in its third year and is co-hosted by Perth Children’s Hospital Foundation (PCHF) and Sydney Children’s Hospitals Foundation (SCHF).
This year’s event at Perth Mess Hall on August 29 raised more than $1.5 million for genomic research, clinical trials, and precision care for kids with rare diseases.
It will help people such as the family of seven-year-old Brookdale resident Mitchell, who lives with Pallister-Killian Syndrome (PKS), a rare genetic condition that affects different cells in the body in unique ways, making symptoms unpredictable.
There are less than 500 cases worldwide and fewer than 30