ORLAND PARK, Ill. (WLS) -- A baby in the Chicago area is battling a rare disease and desperately needs a drug treatment for a better life. The drug has now been granted accelerated approval by the FDA.
The video in the player above is from a previous report.
The U.S. Food and Drug Administration announced Friday it will approve the Forzinity (elamipretide) injection that is currently used to treat an ultra-rare disease called Barth syndrome.
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The FDA had previously delayed its approval in part because the sample sizes were so low.
The pharmaceutical company that produces the drug said it could have gone out of business without the FDA approval. For one family in Orland Park, that would have spelled disaster. They spoke with