Rain poured down in Juneau on Sunday, but that didn’t stop residents from going to Tracy’s Crab Shack for a night of music from the local band The High Costa Livin’. Under covered tents, attendees lined up for food and were surrounded by a silent auction, a raffle and a bake sale.

Tracy’s hosted one of more than 15 local fundraisers working to help a young Juneau resident go on a clinical trial for a rare genetic disease. Emma Jobsis is the mother of four-year-old Cade Jobsis.

“People that I haven’t even asked, I haven’t even talked to, are texting, calling, wanting to be a part of this,” she said. “And I’m just so grateful because there’s no way we could do this alone.”

She says fundraising efforts started a couple years ago, when Cade was diagnosed with SPG50, a rare disease where a c

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