WATERVLIET, N.Y. (NEWS10) -- A local child in Watervliet is facing an ultra rare diagnosis. One-year-old Halo is similar to many other kids, she loves music, dancing, playing with her brother, and laughing with her mom. Yet, she is facing a diagnosis that only sixteen kids in the world are known to have, it’s a rare syndrome called CTBP1.

"She is a light" Halo's mom, Theresa, commented. "Despite her challenges, she smiles every day, and she brings joy to people around her."

Theresa has been fighting tirelessly to find answers and help for Halo, and this past Friday, they finally received the diagnosis.

"It felt like a relief because I'm the biggest advocate for my daughter" Theresa noted.

Theresa said she immediately knew something was wrong when Halo didn’t pick up her head as an infa

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