Bruce Willis and his wife have helped a couple facing their own young frontotemporal dementia diagnosis.
When Emma Heming Willis , 47, watched a video of Sean Durbin, 58, and his wife, Lisa Ihnat-Durbin, 50, telling their story, she recognized the courage it takes to turn personal hardship into public advocacy and teamed up with them to raise awareness.
Sean, from Mentor, Ohio, was diagnosed with the condition after he found his words slipping away mid-sentence.
Now he and wife Lisa use Willis’ diagnosis to help explain his condition to friends and family. 7
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Now, alongside Cleveland Clinic and Emma, they’re working to expand awareness, advocacy, and resources for families facing FTD .
Sean first noticed subtle changes last year when he was 57.
Concerned, he turned to L