Exclusive: A Melbourne artist says she risks losing the use of her arm completely if she doesn't scrape together enough money to pay for a rare surgery.

Dayna Lynch, 26, suffers from Ehlers-Danlos syndrome (EDS), a group of widely misunderstood connective tissue disorders, that has progressively worsened over the past few years.

Lynch told 9news.com.au her arm began showing signs of weakening when she could no longer comfortably hold a pen or click her computer mouse at work.

"It started happening about two months ago. The pain before that had started getting really bad where I needed to take more breaks," Lynch said.

"But then I was just in the middle of working and I just realised that I actually couldn't use my hand on the mouse.

"My arm is my whole career, essentially. My

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