A man who has gradually lost his ability to move most of his muscles says the treatment he’s relying on to slow — and even reverse — his degenerative disease is being revoked.
Jeremy Bray, 30, said he only has a month of treatment left for his Type 2 spinal muscular atrophy because the drug company is ending free coverage.
That prompted him to once again urge the Manitoba government to cover the price of his life-sustaining drug while he still has some independence in his life.
“I don’t want to be put on an expensive treatment that isn’t benefitting me,” Bray said. “I want to try this treatment that has already benefitted me and to be assessed along the way.”
The data consultant from Rivers, Man., has already lost the capacity to move his head, arms, hands and legs. Now, he's down to

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