Should an obscure bureaucracy in Ottawa determine whether a province covers medication for a patient who desperately needs it?

With the Canada Drug Agency’s recommendations setting the standard for most provinces, that’s the unfortunate reality in today’s Canada.

Recommended Videos

Consider the case of Jeremy Bray.

Bray is a 30-year-old Manitoba native with Type 2 spinal muscular atrophy, a progressive neuromuscular disease, a rare medical condition that progressively weakens his muscles.

Thanks to a compassionate free drug program, Bray has been receiving the drug Risdiplam from manufacturer Roche, which has helped to stabilize his condition.

As Bray told CityNews, the drug helped him be able to work, drive his wheelchair, and function in society.

But all that was at risk of being

See Full Page