For most Aussie kids, summer means freedom – long afternoons in the sun, backyard cricket, beach trips and pool parties.

But for sisters Amielle, 12, and Taya, 7, sunlight is life-threatening.

The Sydney girls live with Xeroderman Pigmentosum (XP), an incredibly rare genetic condition that leaves them unable to repair UV-induced DNA damage.

Even the smallest amount of sunlight can cause severe burns and raises their risk of skin cancer by up to 10,000 times.

They also have a 2,000-fold increased risk for cancer of the eye surface.

As they prepare for their fifth summer since their diagnosis, the heat is already “relentless.”

“It’s sad and confronting,” their mom Yvette Walker told news.com.au during an emotional interview.

“No amount of UV is safe for them.”

XP is so rare that

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