Lillia Jakeman, who was diagnosed with motor neurone disease in August, has become the victim of a postcode lottery, as Tofersen is available for free in some parts of the country but not others

A British teenager with motor neurone disease has reportedly been denied access to a "miracle drug" which slows the decline caused by the condition.

Lillia Jakeman, 19, was told about new drug Tofersen shortly after her diagnosis of SOD1 MND in August but she has now become the victim of a postcode lottery. The drug is available for free in some parts of the country but not others and it happens that Lillia, who lives in Romsey, Hampshire, has allegedly been denied access.

The pharmaceutical company Biogen is providing the drug for free to the NHS , but the relevant trust must have the appro

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