NORTHERN KENTUCKY (WXIX) - A Tri-State family is hosting an upcoming fundraiser to help raise awareness for a rare genetic condition their son has.

Van Foster is 11 months old and one of just 50 children in the world with KARS mutation.

Van’s mother, Kristen Holmes, said his diagnosis has been earth-shattering, but they are determined to help with research however they can, so hopefully other families won’t face the unknowns that they have.

“We’re trying to give other families in the future with this hope, rather than being told there’s no direction, and uncharted territory and no treatment,” Holmes said.

Last September, after a normal pregnancy, Holmes and Taylor Foster welcomed their baby, Van.

He seemed to be a healthy and happy baby, until his two month check up.

Doctors notic

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