Darren Ormiston, a 9-year-old boy with Duchenne muscular dystrophy, suddenly screamed and lept from his wheelchair, running to a doctor with his hands in the air.
Darren wasn’t in distress, just really excited for his high-fives from neurologist Dr. John Crawford and Jessica Miley of the CHOC Foundation during the ribbon-cutting ceremony to launch a clinic dedicated to the progressive neuromuscular disorder he is living with.
The new CureDuchenne Clinic has opened at the Rady Children’s Hospital of Orange County’s Children’s Health Center at the Joe C. Wen & Family Center for Advanced Care in Irvine.
Duchenne muscular dystrophy is a genetic disorder predominantly affecting boys. An estimated 15,000 individuals in the United States are affected by DMD. • Doctors, Duchenne muscular dyst