A South Florida family says their young daughter’s health is at risk as they find themselves caught in the middle of a contract dispute between their insurance provider and a local hospital.

Kelsey and Miles McGrane’s 4-year-old daughter, Parker, was born with an extremely rare genetic condition called mandibulofacial dysostosis with microcephaly (MFDM). The family says there are fewer than 200 cases that have been documented worldwide. The disorder affects bone development in the face and skull and can cause breathing problems, hearing loss, and developmental delays.

“Immediately upon being born, she was unable to breathe on her own, so she was intubated,” Kelsey McGrane recalled. Just 10 days later, she says Parker underwent her first surgery at Memorial Healthcare’s Joe DiMaggio Child

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