LONG ISLAND (WABC) -- A 12-year-old boy from Long Island with a rare genetic disorder got a heartwarming surprise.

Ali Sherazi is one of about 1 in 100 people worldwide who have been diagnosed with a rare genetic disorder with no cure.

When his favorite airline got word of his story, they gave him the surprise of a lifetime.

Sherazi is nonverbal and was diagnosed with a rare genetic disorder, NGLY1 deficiency, which is so rare, only 15 children in the U.S. have it.

About six months ago, things took a turn for the worse.

"Ali had a rapid decline. He has lost his mobility and now he's wheelchair bound and in May, he was put on pediatric hospice. Unfortunately, there is no cure for this," Sherazi's mother, Noorulain, said.

But Ali has one passion that lifts his spirits: JetBlue planes.

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