IOWA CITY, Iowa (KCRG) - A 7-year-old boy from Greenfield will be this week’s Kid Captain for when the Iowa Hawkeyes take on the Nittany Lions.
Micah Norby was diagnosed with Duchenne muscular dystrophy at 5 years old.
Micah received a new gene therapy on the day before his sixth birthday at the University of Iowa Stead Family Children’s Hospital. The treatment was intended to slow the progression of the disease.
The treatment needed to be administered before he turned six years old. His health care team had to appeal for insurance coverage, and an illness caused a delay in treatment.
Micah was the first child in Iowa outside of clinical trials to receive this treatment for Duchenne muscular dystrophy.
He is now 7 years old and enjoys swimming, fishing, and using his remote-control ca