QUINCY (WGEM) - The Kempf family received devastating news twice. Both of their children have been diagnosed with Sanfilippo Syndrome Type B, an incredibly rare genetic disorder that affects approximately 30 children in the United States.

Nine-year-old Poppy and 2-year-old Oliver both carry the diagnosis. Parents Kyle and Megan say Oliver is the youngest person on record in the U.S. with the condition.

“She’s very happy. She’s got a lot of energy. She’s loud and joyful and loves to sing,” said Megan Kempf, describing Poppy. “You can tell she’s happy ‘cause she’s singing. You can tell she’s mad ‘cause she’s singing.”

Kyle Kempf said Oliver “has his 2-year-old nopes” but “you can hear him laughing a mile away.”

Six-year journey to diagnosis

The Kempfs’ search for answers spanned six yea

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