The family started to notice physical issues after around six months

A mum has said it's "too heart-wrenching" to contemplate the future. Stella Tikkirou and her partner, George Vasili, welcomed their now 11-year-old daughter, Penelope Vasili, in 2014, but Stella confessed she "knew something was wrong" with her daughter's health even before she was born as she was "coming up quite small" on her final ultrasound scans.

The engaged couple, who reside in Kingston upon Thames, London, noticed that Penelope was "always so upset and really unsettled" as a baby, and at around six months old, Stella realised she "wasn't really holding herself up", describing Penelope as "a little floppy rag doll". Stella, who is training to be a Pilates teacher whilst also being a full-time carer for her only c

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