Life after stroke: the hidden struggle for recovery

Stroke is one of the leading causes of serious and complex adult disability; anyone reading this could be the next stroke survivor.

Every day in the UK, 240 people of all ages wake up to the effects of stroke: unable to move, see, speak or even swallow. Many survivors describe stroke as a “thief” that takes the life they once knew. Stroke affects not only the survivor but also the family, community, health services and wider economy. Although more people survive stroke than in the past, too many do so without the support needed to make meaningful recovery possible.

Six months after a stroke, 64% of survivors still have problems carrying out usual activities, 47% report anxiety or depression and 62% struggle with mobility. This pattern has been documented repeatedly in national datasets, including the UK’s Sentinel Stroke National Audit Programme, which also found that only 35.1% of eligible survivors received a six-month follow-up.

But many people live with hidden disabilities for five to eight years after a stroke, even if they appear physically well. These can include pain, fatigue, sleep problems and reduced social participation, memory loss, difficulty concentrating and sensory changes.

These long-lasting effects highlight the need for comprehensive and sustained support that matches the complexity of life after stroke. Support groups such as the Stroke Association and Different Strokes offer peer connection, information, emotional support and advocacy.

However, they cannot replace structured NHS rehabilitation, psychological care and long-term clinical follow-up, which many survivors report is inconsistent or unavailable.

What is missing for many people is reliable access to NHS-delivered therapy, mental health provision, vocational rehabilitation and regular reviews that identify ongoing or emerging needs.

There are also major practical consequences. Losing independence, being unable to return to work and facing financial pressures can have profound effects on survivors and their families. A quarter of all strokes happen in people under 65, during their most productive working years. About one third of survivors in this age group leave employment after a stroke, often resulting in significant financial instability.

This individual loss becomes a societal challenge. Stroke costs an estimated €60 billion per year across the EU (about £51 billion). Improving vocational support could help reduce this impact.

Early support means intervention as soon as someone is medically stable and beginning rehabilitation. It includes workplace assessments, gradual return-to-work planning, retraining when needed and guidance on benefits or workplace adjustments. Evidence shows that early vocational rehabilitation significantly improves return-to-work outcomes.

Traditional stroke rehabilitation includes physiotherapy, occupational therapy and speech therapy. Physiotherapy helps restore upper and lower limb movement. Speech therapy supports communication, reading and writing.

Occupational therapy helps people manage everyday tasks and rebuild cognitive skills such as working memory and flexible thinking. Despite these well-established therapies, many survivors continue to experience significant disability that affects daily functioning.

Although guidance recommends at least three hours per day of therapy delivered by rehabilitation professionals, demand vastly exceeds capacity. In reality, the average daily therapy time in many services is closer to 14 minutes.

As a result, many survivors experience gaps in long-term support, including rehabilitation, psychological care and community reintegration. Holistic, person-centred services that continue well beyond hospital discharge are essential.

Effective care must address both medical and social needs. This includes community resources such as social prescribing schemes, local neurorehabilitation hubs, peer support networks and accessible exercise programmes. It also includes caregiver support for unpaid family or friend carers through training, respite and financial guidance. Tailored rehabilitation plans are vital to ensure that support adapts as survivors’ needs change.

Innovation offers new possibilities. Technology enriched rehabilitation such as robotics, virtual reality and digital wearables can increase the intensity of repetitions, improve patient engagement and provide precise feedback on movement and performance.

The use of therapeutic robots has been shown in several trials to improve upper limb function in selected stroke patients while reducing the physical workload on therapists. Selection is typically based on clinical assessments of arm or hand impairment, cognitive capacity to follow instructions and the stage of rehabilitation.

Stroke survival has improved, but survival alone is not enough. The evidence shows that long-term disability, unmet clinical needs and preventable loss of independence continue to shape life after stroke for millions. A system built around short bursts of early rehabilitation cannot meet the needs of a condition that unfolds over years.

Improving access to therapy, psychological care, vocational support and community services is not an optional extra. It is central to giving stroke survivors the chance to rebuild their future.

Without this shift, the gap between what is possible and what people receive will continue to define life after stroke. After all, a life saved should be a life worth living.

This article is republished from The Conversation, a nonprofit, independent news organization bringing you facts and trustworthy analysis to help you make sense of our complex world. It was written by: Siobhan Mclernon, London South Bank University and Raafiah Mussa, UCL

The authors do not work for, consult, own shares in or receive funding from any company or organisation that would benefit from this article, and have disclosed no relevant affiliations beyond their academic appointment.