After my younger brother, Adam, was born three months prematurely in May of 2002, my mother, father, and I spent most of our time in the hospital. He weighed less than one pound and spent every moment under the care of a loving team of doctors and nurses.

I remember waving to him through the glass of his incubator, observing him like a guppy in a fish tank. “I love you, little brother,” I would whisper after overhearing an adult say we should talk to him because the sound of our voices would comfort him if he was in pain.

Unfortunately, pain was part of Adam’s daily life. After being born prematurely, Adam had very little vision or hearing. He would never be able to talk, and if he lived past infancy, would never be able to walk. His condition was caused by a long list of complicated med

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