Four families fight to fund SPG50 gene therapy treatment for their kids

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Four American families are desperate to save their children from a devastating genetic disease . The cure exists — but it’s up to them to raise $1.15 million to fund a clinical trial.

Each of these families has a child with spastic paraplegia 50 (SPG50), a rare neurological disorder that affects fewer than 100 people in the world.

In an on-camera interview with Fox News Digital, the families spoke about their race against time to secure the treatment. (See the video at the top of the article.)

MOTHER FRANTIC TO SAVE CLINICAL TRIAL THAT COULD CURE HER DAUGHTER: ‘THE TREATMENT IS SITTING IN A FRIDGE'

The families' goal is to raise $1.15 million by the end of October to start the trial in the U.S. They have set up a nonp