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A tot has been diagnosed with a condition so rare it remains unnamed, making him the only known case across the UK.

Amanda Thomas, 35, is desperately searching for other children like Jack, aged one, as doctors believe he may have just a year left to live.

However, there are merely 16 recorded cases globally. Amanda has revealed the initial warning signs that her baby was unwell.

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She realised something was seriously amiss when little Jack couldn't make eye contact, reports the Mirror .

Her baby's right eye subsequently turned outward and became fixed, before he suffered a life-threatening seizure.

Medical professionals were unable to identify the cause until discoverin

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