LEXINGTON, Ky. (FOX 56) — Imagine learning your child needs a kidney transplant to survive. Now, imagine your other child needs one too, and so do you.

The three have a rare genetic disease called Alport syndrome.

All three are on the transplant waiting list at the University of Kentucky.

“It affects about one in every 50,000 births,” Massie explained. “It affects the way that the collagen develops in the kidney, so it deteriorates over time, and eventually your kidneys fail.”

Collins, 21, went into kidney failure in December 2024. He started hemodialysis sessions three times a week in January 2025.

Massie, 22, went into failure in June of 2025.

On top of all of that, Liles, 42, has also been diagnosed with kidney failure due to the rejection of her ten-year-old transplanted kidney.

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