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VICTORIA, Minnesota ( WCCO ) -- A Victoria, Minnesota, family is channeling their heartbreak into hope.

When Dan and Stephanie Born welcomed their daughter Helen into the world, they felt their family was finally complete. Helen Born was spirited from the start and has always loved pink, hugs and all things "girl."

Now, that spirit is helping Helen Born — and her parents — fight an unimaginable disease.

"It's been a really, really difficult year," Stephanie Born said.

It was around age 2 that Dan and Steph Born started to notice some changes. Helen Born was a bit clumsy, and her speech was delayed. Last summer, the seizures started. By age 4, doctors delivered a diagnosis the Born family had never heard of: CLN2 Batten disease — a rare, degenerat

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